If I don't do it-who will? Shay Rishoni [PRIZE 4 LIFE]
If I don't do it-who will? The story of Shay Rishoni, founder of PRIZE4LIFE for ALS patients
Cofounder, Eyecontrol
Search every verified Shay Rishoni interview, podcast appearance, and on-the-record quote โ each transcript cross-checked by AI and human review to confirm speaker identity. Shay Rishoni, cofounder of Eyecontrol, was diagnosed with ALS in 2011 and is now completely paralyzed, communicating only through eye movements. He heads the Prize for Life Association and leads an interdisciplinary team focused on improving healthcare provider bedside manner. Rishoni stated that he believes it is his responsibility to do all he can to find a cure for ALS, saying, "if not me then who, and if not now then when." Rishoni and his team developed the ALS Mobile Analyzer, an application that allows patients to conduct tests at home involving tasks like drawing, finger tapping, speech, and movement. He described the platform as monitoring daily functions of ALS patients "objectively, accurately and frequently" and noted that the algorithm analyzes data to predict disease progression. Rishoni said that ALS clinicians lack data on how the disease progresses day to day and that the application addresses this gap. He also commented that technological advances now allow "everyday people" to build applications, a capability he said was unavailable a few years ago.
“We have developed a complete platform that monitors the daily functions of ALS patients in the comfort of their own homes and that can objectively, accurately and frequently assess disease progression.”
“The revolutionary aspect of this new application is the algorithm which analyzes all of the data from the application and predicts disease progression.”
“ALS clinicians don't have a lot of data about ALS; they don't actually know how it progresses โ how the symptoms appear, how they manifest from day to day. This is where the ALS mobile analyzer fits.”
“It seems that only patients living on borrowed time understand the urgency of finding a cure for their disease and they cannot afford to wait for solutions from other sources.”
If I don't do it-who will? The story of Shay Rishoni, founder of PRIZE4LIFE for ALS patients
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